By Joshua Symons, Director of the Institute of Global Health Innovation’s Big Data Analytical Unit
Patient data is precious. It’s a resource that many researchers and clinicians use to improve healthcare and therefore the lives of patients and health professionals. That’s why we want to make sure it’s used in a way that’s both effective and safe. (more…)
By Anna Lawrence-Jones (co-written with Jean Straus).
This article originally appeared on the UCL Public Engagement blog and has been reposted with permission. Visit the blog to read more about the UCL Centre for Co-Production in Health Research.
In my former job at Cancer Research UK, I organised Sandpit Innovation Workshops that brought together researchers, healthcare professionals and innovative thinkers to come up with novel research ideas to help solve a health challenge. Normally a three-day event, sandpits are a way to generate research ideas – which are inevitably more innovative and daring in this spontaneous environment – and get them funded quickly. But often, patient attendees were part of a panel which selected projects to fund, and were not part of the teams producing the ideas themselves. I often felt these were a lost opportunity for patients to have a greater role. (more…)
Patient engagement has become a key priority in today’s health and care systems. And some have argued it’s essential for the sustainability of the NHS.
Patient engagement (PE), the involvement of patients in their medical process, is not a new concept. It first appeared in the late 80s, when the US Food and Drug Administration brought together patients, government, industry, and academia to identify and remove barriers to successful HIV drug and treatment development. Since then, PE activities have blossomed across clinical and non-clinical areas, and generated meaningful insight into and impact on quality improvement in healthcare service and delivery.
“I would recommend highly [the RPG] to other researchers”
– Researcher quote 15/08/2019
Just over a year ago my colleague and fellow lay member John Norton wrote a blog post introducing the newly-created Research Partners Group (RPG): An insider’s view of patient and public involvement. We’re a diverse group of 11 patients, carers and members of the public brought together by the Imperial Patient Safety Translational Research Centre (PSTRC). We were set up to help review research projects and researchers’ plans for involving people like us in their work.
Well, here we are just over one year later, and we have been very busy!
How can we make the NHS the safest healthcare system in the world? Can we harness the power of digital technology to improve patient safety? What digital innovations do we need to improve the safety of care, and what approaches are necessary to enable healthcare staff to interact with these innovations in technology?
These are big questions. But none too bold to be addressed at our recent NIHR Imperial Patient Safety Translational Research Centre (PSTRC) Symposium. By tackling challenging topics such as these, our event provoked impassioned discussion and debate while whetting the captive audience’s appetite with plenty of food for thought. (more…)
By Dr Ana Luisa Neves, Research Fellow at the Imperial NIHR Patient Safety Translational Research Centre.
Over the last decade, incentives to adopt electronic health records have spread worldwide. Electronic health records offer many advantages, including an easier access to centralised health information by healthcare providers, patients and researchers, ultimately leading to a better coordination of patient care, greater efficiency, and better health outcomes. (more…)
Two years on and the Summit has achieved enormous international success. It has been held in 3 countries – the UK, Germany and Japan – and in its third iteration attracted delegates from over 40 countries. (more…)
My name is Katy Pickles and I’m currently part of the Young Persons Advisory Group (YPAG) for Imperial College London’s social media, other technologies and mental health research, which is focused on how young people might use social media whilst suffering with a mental health issue. Having used social media whilst in treatment for mental illness, I have found myself curious about the results of research such as this. I have been receiving information and helping shape the project for just over a month now and look forward to the next few months whilst I follow the progress that is made. (more…)
I am delighted to have been appointed one of the first 11 patient, carer and public members (lay partners) of the new Research Partners Group (RPG) of the Patient Safety Translational Research Centre (PSTRC).
What a mouthful of terms! But, essentially, the RPG is one of the new structures the PSTRC have put in place to help ensure appropriate involvement of patients, carers, and members of the public across its research projects. The RPG will be the first point of call for researchers and will scrutinise the patient and public involvement plans in research projects and act as a link to other lay partners. The “P” is very important, as I strongly believe that patients and the public should be equal “partners” in research and care. (more…)
Let me start by describing an average episode of care in 2017. John is in his mid-50’s, a smoker (average 10 cigarettes a day), drinks regularly (around 2 pints of beer or 2 medium glasses of wine on his heaviest drinking day) and does not exercise frequently. He is overweight and has a family history of heart disease. John booked an appointment with his local GP because he had been having worsening chest pains over the previous five weeks. His GP referred him to the local rapid access chest pain clinic, where he had tests such as an ECG. The tests did not show any abnormalities and John was sent back to his GP with a note asking his doctors to continue monitoring him in case his symptoms worsened. His GP received the summary but did not schedule a follow-up appointment with John because the practice was short-staffed that day. (more…)