Tag: Patient & Public Involvement

Introducing our Patient & Public Involvement Resource Hub

Public involvement in health and biomedical research is increasingly seen as both desirable and necessary. Desirable because the public’s vast and varied experience can bring important perspectives to research. Necessary because many funders now require it.

That’s why we’ve developed the Patient and Public Involvement (PPI) Resource Hub – to guide researchers through the process of actively involving patients and members of the public in their research and projects.

Computer screen icon inset with screenshot of PPI Resource Hub
Click image to visit PERC’s PPI Resource Hub


Case study #7: Parents with experience of preterm birth help shape Imperial research

In conversation with: Dr Lynne Sykes, Academic Clinical Lecturer
Working within: Institute of Reproductive & Developmental Biology

Photo of the preterm birth research PPI group
The Imperial preterm birth research PPI group comprising a mix of clinicians, researchers and members of the public.

What did you do?

With the help of the NIHR Imperial BRC PPI award, we were able to set up a Patient and Public Involvement (PPI) group to help shape our preterm birth research at Imperial. The funding enabled us to invite 10–15 participants to three PPI meetings over a course of 12 months. We now have an established group with around seven core members and one nominated representative. The meetings have been a great way to present, and get feedback, on our current and future research plans. Group members have also helped in constructing lay summaries for several (successful) grant applications, and input into the creation of a short video as part of a recent $5 million grant application. (more…)

PPI funding proposals: How to win over our judges

The hardest thing about submitting a grant application is often not knowing what the judges are looking for. So, with the call now open for this year’s NIHR Imperial BRC Patient and Public Involvement (PPI) grant scheme funding, but the deadline fast approaching, we thought we’d ask both past winners and members of the judging panel to share their thoughts and insights on what makes a winning patient and public involvement proposal…



Case study #4: Research priority-setting – how feasible is a festival approach?

In conversation with: Raheelah Ahmad, NIHR Knowledge Mobilisation Fellow
Working within: NIHR Health Protection Research Unit in Infections and Antimicrobial Resistance

What did you do?

Our team (Raheelah Ahmad, Tim Rawson, Enrique Castro-Sánchez, Esmita Charani, Luke Moore and Alison Holmes) set out to explore if and how citizens would be willing to take part in setting priorities for research funding. (more…)

Case study #3: The Healthy Start, Happy Start Study

In conversation with: Rachael Ryan, Research Assistant
Working within: Centre for Psychiatry, Department of Medicine

Our study website (www.happystart.org.uk) was just one of the suggestions that came from our Study Advisory Group.

What did you do?

The Healthy Start, Happy Start (HSHS) study aims to help parents better understand their child’s communication and behaviour, and to learn different ways of reacting. We set up a Study Advisory Group (SAG) and asked them for ideas on participant recruitment and materials. The group has developed over time to also consider how to explain different parts of the research to participants and how to best keep participants engaged.