Tag: Patient & Public Involvement

Case study #11: The ALGeBRA Steering Group for breast cancer research

This entry is part 11 of 11 in the series Case studies

In conversation with: Camarie Welgemoed, Honorary Clinical Research Fellow and part-time PhD, currently working as Breast Specialist Superintendent in radiotherapy.

Working within: Radiotherapy at Charing Cross hospital, doing a PhD in the Department of Surgery and Cancer.

Case Study #10: An interactive PPIE workshop on kidney transplant rejection

This entry is part 10 of 11 in the series Case studies

We are delighted to announce the NIHR Imperial BRC PPI Grant Scheme is now open until Friday 19 October 2018, 5pm. The purpose of this grant scheme is to support motivated researchers and their teams to undertake meaningful and impactful public and patient involvement that will shape their research and enhance the translation of biomedical research from bench to bedside. As this is our fourth round of funding, we spoke with Dr Candice Roufosse, Senior Clinical Lecturer at the Centre for Inflammatory Diseases about how winning a PPI Grant helped improve their research.

PPI meets RRI – what can we learn from the European example?

To celebrate National Co-production Week, we sat down with Rosina Malagrida (Head of the Living Lab for Health at IrsiCaixa, Barcelona) to discuss ‘Responsible Research and Innovation’ and what the U.K. can learn from the European example.

Case Study #9: Inflammatory Bowel Disease (IBD) Patient Involvement in Research Day #IBDPRD

This entry is part 9 of 11 in the series Case studies

Crohn’s Disease and Ulcerative Colitis are the two main forms of inflammatory bowel disease (IBD) and affect more than 300,000 people in the UK. To mark world IBD day, Kapil Sahnan (surgical trainee) and Mark Samaan (gastroenterology trainee) organised and ran a National Patient and Public Involvement (PPI) Research Day for patients with inflammatory bowel disease.

They worked with a team of PPI experts including: Ailsa Hart (UK PPI lead for Gastroenterology), Christine Norton (Professor of Nursing), Nicola Fearnhead (President in waiting of the ACPGBI), Phil Tozer (an academic colorectal surgeon) and two fantastic expert patients (Azmina Verjee and Sue Blackwell).

What can an engineering PhD student learn from PPI?

Biomedical Engineer Shruti Turner reflects on the recent CRISH (Co-creating Innovative Solutions in Health) course and explains that engineers could learn a lot from PPI.

Introducing our Patient & Public Involvement Resource Hub

Public involvement in health and biomedical research is increasingly seen as both desirable and necessary. Desirable because the public’s vast and varied experience can bring important perspectives to research. Necessary because many funders now require it.

That’s why we’ve developed the Patient and Public Involvement (PPI) Resource Hub – to guide researchers through the process of actively involving patients and members of the public in their research and projects.

Case study #7: Parents with experience of preterm birth help shape Imperial research

This entry is part 7 of 11 in the series Case studies

In conversation with: Dr Lynne Sykes, Academic Clinical Lecturer Working within: Institute of Reproductive & Developmental Biology

What did you do?

With the help of the NIHR Imperial BRC PPI award, we were able to set up a Patient and Public Involvement (PPI) group to help shape our preterm birth research at Imperial. The funding enabled us to invite 10–15 participants to three PPI meetings over a course of 12 months. We now have an established group with around seven core members and one nominated representative. The meetings have been a great way to present, and get feedback, on our current and future research plans.

PPI funding proposals: How to win over our judges

The hardest thing about submitting a grant application is often not knowing what the judges are looking for. So, with the call now open for this year’s NIHR Imperial BRC Patient and Public Involvement (PPI) grant scheme funding, but the deadline fast approaching, we thought we’d ask both past winners and members of the judging panel to share their thoughts and insights on what makes a winning patient and public involvement proposal…