Completing the Feedback Loop: how to improve your Patient and Public Involvement.

Elspeth Mathie discusses her recent study on the importance of giving feedback to the public in PPI.

 

Are members of the public wasting their time?

It is widely accepted that Patient and Public Involvement is beneficial for health research. However, imagine spending time giving your opinion and never getting any feedback. Some members of the public ask “am I wasting my time”? Many PPI contributors (lay members, service users, patients, members of the public) say that they contribute to the design of research studies but do not hear if their comments get to the researcher, are useful or make any difference to the research. The idea for our research study came from PPI contributors and PPI leads in the East of England and was funded by the Collaboration for Leadership in Applied Health Research and Care (CLAHRC EoE).  We designed a study to examine the variation, types, importance of, and satisfaction with feedback given by researchers to PPI contributors. We carried out an online survey amongst six PPI groups in the East of England, interviews and an audit.

(more…)

What can an engineering PhD student learn from PPI?

Biomedical Engineer Shruti Turner reflects on the recent CRISH (Co-creating Innovative Solutions in Health) course and explains that engineers could learn a lot from PPI.

(more…)

What does PPI look like in the Imperial NHS Trust?

Readers of this blog will be familiar with Patient and Public Involvement in a research setting. But what does PPI look like within health care services? Here Imperial NHS Trust Lay Partners Mariam Mohammed and John Norton share their perspectives. 

John and Mariam strategic lay forum

(more…)

Case study #5: Establishing a public panel in research

In conversation with: Aime Boakye, Junior Study Coordinator and PPI/E Lead
Working within: HPRU in Respiratory Infections

Panel members reviewing an animated film about latent tuberculosis.

What did you do?

It was a primary aim of our NIHR Health Protection Research Unit (HPRU) in Respiratory Infections to seek meaningful patient and public input in our three research areas: Influenza, Tuberculosis and Other Acute Respiratory Infections. Therefore, we appointed two patient representatives (for Flu and Tuberculosis) who were invited to our key strategic and public meetings.

Additional to that, in January 2017, we set up a panel of patients and members of the public who either had experience of respiratory conditions or were interested in our three research areas. We meet between two and three times a year for two hours where they helped us to identify, plan and design our research within the themes listed above.

(more…)