Tag: Patient and Public Involvement

Case Study #10: An interactive PPIE workshop on kidney transplant rejection

This entry is part 10 of 10 in the series Case studies

We are delighted to announce the NIHR Imperial BRC PPI Grant Scheme is now open until Friday 19 October 2018, 5pm. The purpose of this grant scheme is to support motivated researchers and their teams to undertake meaningful and impactful public and patient involvement that will shape their research and enhance the translation of biomedical research from bench to bedside. As this is our fourth round of funding, we spoke with Dr Candice Roufosse, Senior Clinical Lecturer at the Centre for Inflammatory Diseases about how winning a PPI Grant helped improve their research.

Completing the Feedback Loop: how to improve your Patient and Public Involvement.

Elspeth Mathie discusses her recent study on the importance of giving feedback to the public in PPI.

 

Are members of the public wasting their time?

It is widely accepted that Patient and Public Involvement is beneficial for health research. However, imagine spending time giving your opinion and never getting any feedback. Some members of the public ask “am I wasting my time”? Many PPI contributors (lay members, service users, patients, members of the public) say that they contribute to the design of research studies but do not hear if their comments get to the researcher, are useful or make any difference to the research.

What can an engineering PhD student learn from PPI?

Biomedical Engineer Shruti Turner reflects on the recent CRISH (Co-creating Innovative Solutions in Health) course and explains that engineers could learn a lot from PPI.

Case study #5: Establishing a public panel in research

This entry is part 5 of 10 in the series Case studies

In conversation with: Aime Boakye, Junior Study Coordinator and PPI/E Lead Working within: HPRU in Respiratory Infections

What did you do?

It was a primary aim of our NIHR Health Protection Research Unit (HPRU) in Respiratory Infections to seek meaningful patient and public input in our three research areas: Influenza, Tuberculosis and Other Acute Respiratory Infections. Therefore, we appointed two patient representatives (for Flu and Tuberculosis) who were invited to our key strategic and public meetings.

Additional to that, in January 2017, we set up a panel of patients and members of the public who either had experience of respiratory conditions or were interested in our three research areas.