Case study #7: Parents with experience of preterm birth help shape Imperial research

In conversation with: Dr Lynne Sykes, Academic Clinical Lecturer
Working within: Institute of Reproductive & Developmental Biology


What did you do?

With the help of the NIHR Imperial BRC PPI award, we were able to set up a Patient and Public Involvement (PPI) group to help shape our preterm birth research at Imperial. The funding enabled us to invite 10–15 participants to three PPI meetings over a course of 12 months. We now have an established group with around seven core members and one nominated representative. The meetings have been a great way to present, and get feedback, on our current and future research plans. Group members have also helped in constructing lay summaries for several (successful) grant applications, and input into the creation of a short video as part of a recent $5 million grant application. (more…)

What does PPI look like in the Imperial NHS Trust?

Readers of this blog will be familiar with Patient and Public Involvement in a research setting. But what does PPI look like within health care services? Here Imperial NHS Trust Lay Partners Mariam Mohammed and John Norton share their perspectives. 

John and Mariam strategic lay forum

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PPI funding proposals: How to win over our judges

The hardest thing about submitting a grant application is often not knowing what the judges are looking for. So, with the call now open for this year’s NIHR Imperial BRC Patient and Public Involvement (PPI) grant scheme funding, but the deadline fast approaching, we thought we’d ask both past winners and members of the judging panel to share their thoughts and insights on what makes a winning patient and public involvement proposal…

 

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Case study #5: Establishing a public panel in research

In conversation with: Aime Boakye, Junior Study Coordinator and PPI/E Lead
Working within: HPRU in Respiratory Infections

Panel members reviewing an animated film about latent tuberculosis.

What did you do?

It was a primary aim of our NIHR Health Protection Research Unit (HPRU) in Respiratory Infections to seek meaningful patient and public input in our three research areas: Influenza, Tuberculosis and Other Acute Respiratory Infections. Therefore, we appointed two patient representatives (for Flu and Tuberculosis) who were invited to our key strategic and public meetings.

Additional to that, in January 2017, we set up a panel of patients and members of the public who either had experience of respiratory conditions or were interested in our three research areas. We meet between two and three times a year for two hours where they helped us to identify, plan and design our research within the themes listed above.

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