By John Norton
I am delighted to have been appointed one of the first 11 patient, carer and public members (lay partners) of the new Research Partners Group (RPG) of the Patient Safety Translational Research Centre (PSTRC).
What a mouthful of terms! But, essentially, the RPG is one of the new structures the PSTRC have put in place to help ensure appropriate involvement of patients, carers, and members of the public across its research projects. The RPG will be the first point of call for researchers and will scrutinise the patient and public involvement plans in research projects and act as a link to other lay partners. The “P” is very important, as I strongly believe that patients and the public should be equal “partners” in research and care. (more…)
Let me start by describing an average episode of care in 2017. John is in his mid-50’s, a smoker (average 10 cigarettes a day), drinks regularly (around 2 pints of beer or 2 medium glasses of wine on his heaviest drinking day) and does not exercise frequently. He is overweight and has a family history of heart disease. John booked an appointment with his local GP because he had been having worsening chest pains over the previous five weeks. His GP referred him to the local rapid access chest pain clinic, where he had tests such as an ECG. The tests did not show any abnormalities and John was sent back to his GP with a note asking his doctors to continue monitoring him in case his symptoms worsened. His GP received the summary but did not schedule a follow-up appointment with John because the practice was short-staffed that day. (more…)
By Tamanna Miah
I attended the Communications Strategy event on 30 May 2017, which brought together a combination of patients, carers, members of the public, healthcare professionals, researchers and PSTRC staff members who work in communications. We discussed a wide range of issues and had the opportunity to feed into a draft communications strategy for the NIHR Patient Safety Translational Research Centre.
by Sandra Jayacodi
As a servicer user who has been involved in research work and was a Collaboration for Leadership in Applied Health Research and Care Research Fellow (2016), I was privileged to be invited to be part of the NIHR Imperial Patient Safety Translational Research Centre‘s (NIHR Imperial PSTRC) Patient and Public Involvement and Engagement (PPIE) strategy working group.
The aim of the working group was to bring together researchers, healthcare professionals, patients, carers and public members to discuss and improve the draft PPIE strategy for the Centre. The event explored the practicalities of implementing the strategy and discussed how patient and public representatives could be supported in getting involved in research.
by Anna Lawrence-Jones
I was first properly introduced to the term “patient and public involvement and engagement” five and half years ago, working with research grant applications at Wellcome. I was one of the lucky people to be part of the first intake of their Graduate Development Programme, where I got to work in four departments for six months each. The organisation opened my eyes to how important it is to get the public interested in science and the vast possibilities of how to do so. At lunchtimes I had the luxury of going to lectures and exhibitions in the Wellcome Collection next door, which would always be bustling with curious members of the public. (more…)