We’re the Imperial Patient Experience Research Centre team, otherwise known as PERC. And we’re dedicated to improving the quality and impact of healthcare and translational research by promoting and supporting active communication between patients, the public, researchers and clinical staff.
Readers of this blog will be familiar with Patient and Public Involvement in a research setting. But what does PPI look like within health care services? Here Imperial NHS Trust Lay Partners Mariam Mohammed and John Norton share their perspectives.
The hardest thing about submitting a grant application is often not knowing what the judges are looking for. So, with the call now open for this year’s NIHR Imperial BRC Patient and Public Involvement (PPI) grant scheme funding, but the deadline fast approaching, we thought we’d ask both past winners and members of the judging panel to share their thoughts and insights on what makes a winning patient and public involvement proposal…
The majority of new TB cases in the UK are a result of reactivation from latent infection, so the main aim of the film was to explain the immunological basis of reactivation, in order to empower viewers to make informed decisions relating to latent TB screening and treatment, and help reduce disease burden as a result.
It was a primary aim of our NIHR Health Protection Research Unit (HPRU) in Respiratory Infections to seek meaningful patient and public input in our three research areas: Influenza, Tuberculosis and Other Acute Respiratory Infections. Therefore, we appointed two patient representatives (for Flu and Tuberculosis) who were invited to our key strategic and public meetings.
Additional to that, in January 2017, we set up a panel of patients and members of the public who either had experience of respiratory conditions or were interested in our three research areas. We meet between two and three times a year for two hours where they helped us to identify, plan and design our research within the themes listed above.
Our team (Raheelah Ahmad, Tim Rawson, Enrique Castro-Sánchez, Esmita Charani, Luke Moore and Alison Holmes) set out to explore if and how citizens would be willing to take part in setting priorities for research funding. (more…)
The Healthy Start, Happy Start (HSHS) study aims to help parents better understand their child’s communication and behaviour, and to learn different ways of reacting. We set up a Study Advisory Group (SAG) and asked them for ideas on participant recruitment and materials. The group has developed over time to also consider how to explain different parts of the research to participants and how to best keep participants engaged.
Co-CReating Innovation Solutions for Health (CRISH) is an original two-day multidisciplinary course that aims to bring together health sector members, including patients, to support the co-creation of innovative research, policies, products or services that will promote and improve health. The course is delivered by EIT (European Institute of innovation & Technology) Health, of which Imperial College is a partner.
One of the main pieces of research activity in the group revolves around using Rapid Evaporative Ionisation Mass Spectrometry (REIMS) in the form of the iKnife. This is a surgical diagnostic tool that uses the ‘smoke’ bi-product of surgical diathermy (a widely used alternative to traditional scalpels, where electrically induced heat makes precise cuts to remove unwanted tissue whilst minimising blood loss) for real-time tissue identification.
‘LoL-Lab’ was a collaboration between Imperial scientists and the public. We created and hosted a public ‘science comedy’ event, which was developed jointly with members of the public. LoL-Lab was designed to celebrate and share scientific achievements.
We aimed to connect researchers (i.e. biologists, epidemiologists, and mathematicians) with the public through light-hearted, plain-speaking 10-minute talks at an informal stand-up comedy evening event hosted by a professional comedian.