Tag: Workshops

Frontiers in Cystinuria Research – Learning from patient experience to inform precision medicine research

Dr Toby Athersuch, Lecturer, Phenome Centre

‘Frontiers in Cystinuria Research’ was an event held last October at Imperial College London. It involved people affected by cystinuria in discussions with expert medical professionals and academic researchers active in this area. The aim of the event was to capture some of these rich patient experiences to inform future precision medicine research, while simultaneously providing a forum for patients to share their insight. We feel that these types of event are important enablers of patient-directed research development, particularly relevant in the context of rare metabolic diseases, where patient input and advocacy is often underrepresented.

Case study #1: LOL-lab

This entry is part 1 of 14 in the series Case studies

In conversation with: Nathan Green, Research Fellow Working within: HPRU (Modelling Methodology)

What did you do?

‘LOL-lab’ was a collaboration between Imperial scientists and the public. We created and hosted a public ‘science comedy’ event, which was developed jointly with members of the public. LOL-lab was designed to celebrate and share scientific achievements.

We aimed to connect researchers (i.e. biologists, epidemiologists, and mathematicians) with the public through light-hearted, plain-speaking 10-minute talks at an informal stand-up comedy evening event hosted by a professional comedian.