Tag: Focus Groups

“How patients at different stages of the steroid weaning process helped to shape and design my research”

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In conversation with: Dr Katharine Lazarus, Diabetes and Endocrine Registrar and Clinical Research Fellow, working within the Section of Endocrinology and Investigative Medicine, Department of Metabolism, Digestion and Reproduction, Imperial College London

What is your research project about and what stage are you at?

Steroid tablets, such as prednisolone are widely used to treat conditions such as asthma and arthritis. One in six people take steroids at any one time and one in 50 adults (approximately 1 million in the UK) take steroids for a prolonged period. 

Why has nobody asked us?! Our journey so far to co-produce research.

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In conversation with Dr Helen Skirrow, National Institute Health Research Clinical Doctoral Research Fellow, Child Health Unit, Department of Primary Care and Public Health, School of Public Health, Imperial College London. and Lena Choudary-Salter, Founder and CEO of The Mosaic Community Trust

What is “Why has nobody asked us?” about?

“Why has nobody asked us?” aims to explore families’ experiences and perspectives of childhood vaccinations and is a co-production research project between Dr Helen Skirrow and The Mosaic Community Trust. In the UK, children living in poorer areas of big cities like London who belong to ethnic minorities or who do not speak English at home are less likely to be vaccinated however in previous research the voices of these families have often been missing.

Involving those with lived experience of Anorexia Nervosa in clinical trial design

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In conversation with: Dr Meg Spriggs (Research Associate) and Hannah Douglass (PhD Candidate)Centre for Psychedelic Research, Division of Brain Sciences, Imperial College, London

Working in collaboration with:  Dr Kirsty Alderton and Dr Frederico Magalhaes who offered mental health support for these focus groups.

What did you do?

There is a current lack of effective treatments for anorexia nervosa (an eating disorder characterised by weight loss, difficulties maintaining weight, and often a preoccupation with one’s own body weight and shape). With fewer than half of those diagnosed with anorexia making a full recovery, there is a desperate need for new treatment avenues to be explored.

Case study #4: Research priority-setting – how feasible is a festival approach?

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In conversation with: Raheelah Ahmad, NIHR Knowledge Mobilisation Fellow Working within: NIHR Health Protection Research Unit in Infections and Antimicrobial Resistance

What did you do?

Our team (Raheelah Ahmad, Tim Rawson, Enrique Castro-Sánchez, Esmita Charani, Luke Moore and Alison Holmes) set out to explore if and how citizens would be willing to take part in setting priorities for research funding.