Tag: Advisory Group

The Young People in Psych Research Group: helping scientists iMAGine better research for self-harm

This entry is part 4 of 4 in the series PPI Awards: Round 4 Reports

In conversation with: Dr Martina Di Simplicio, Clinical Senior Lecturer in Psychiatry, and Rachel Rodrigues, PhD Student.

Working within/Team name: Mood Instability Research Group, Centre for Psychiatry, Department of Medicine.

What did you do?

Our research project called iMAGine looks at the psychological processes contributing to maintenance of self-harm behaviour in young people, including whether aspects of ‘reward’ or positive reinforcement underlie self-harm. From the very start of the study, we’ve been collaborating with a group of six young people (17 to 25-year-olds) with and without experience of self-harm.

Case study #20: Public involvement in prematurity research at Imperial Women’s Health Research Centre

This entry is part 3 of 4 in the series PPI Awards: Round 4 Reports

In conversation with: Lynne Sykes, Clinical Lecturer; Rachel Akers, Senior Research Midwife; and Malko Adan, Senior Research Midwife

Working within: Prematurity Research, Women’s Health Research Centre at Imperial Institute of Reproductive & Developmental Biology

What did you do?

We held face-to-face meetings with patients who took part in our preterm research project meetings to garner acceptability and opinions for new research techniques. We chose this method because it allowed our patients to share their experiences with others and catch up with the research team, who they saw for a large amount of time during their pregnancy.

Case study #19: Involving women in the design of maternal cardiovascular research

This entry is part 2 of 4 in the series PPI Awards: Round 4 Reports

In conversation with: Olive Adams, Research Midwife

Working within: Centre for Fetal Care (NIHR Imperial BRC Theme: Maternity Cardiovascular)

What did you do?

Our research department, the Centre for Fetal Care, undertakes studies on maternal cardiovascular health and other conditions in pregnancy at Imperial and with European collaborators.

We formed a group of women who were either affected by conditions addressed in our research or who were in the pre-conception period (the weeks or months when a woman or couple decides to have a child).

Case study #18: Achieving more through public involvement in antimicrobial stewardship

This entry is part 1 of 4 in the series PPI Awards: Round 4 Reports

In conversation with: Dr Monsey McLeod, Lead Pharmacist Medication Safety and Anti-infectives Research and Dr Anne Campbell, Research Associate at National Institute for Health Research Health Protection Research Unit (NIHR HPRU) in Healthcare Associated Infection and Antimicrobial Resistance at Imperial College London.

What did you do?

Antimicrobial resistance is a key threat to patient safety and a major driver is antibiotic use. In the UK, general practitioners (GPs) prescribe approximately 75% of all antibiotics. Under 20% of these prescriptions will benefit patients, but they all increase the number of microbes that are resistant to antibiotics, and can cause side-effects. 

Case study #14: Public involvement in research that is less “public facing” – PPI and Mathematical Modelling

By Dale Weston, Research Fellow, NIHR Health Protection Research Unit (Modelling Methodology) (HPRU(MM))

What did you do?

Our project was a Patient and Public Involvement group with 8 members of the public, attending a half-day workshop. First, they provided input on a systematic literature review drafted by a member of the research team entitled “Human Behaviour and Infectious Disease Modelling: A Scoping Review of the Literature and Recommendations for the Future”. The members of the public were sent the draft systematic review to read ahead of the workshop together with a useful guide to reading a scientific paper. Roundtable discussions were then held concerning any questions, perceptions, thoughts, or concerns that arose in response to the systematic review.

Case study #11: The ALGeBRA Steering Group for breast cancer research

In conversation with: Camarie Welgemoed, Honorary Clinical Research Fellow and part-time PhD, currently working as Breast Specialist Superintendent in radiotherapy.

Working within: Radiotherapy at Charing Cross hospital, doing a PhD in the Department of Surgery and Cancer.

Case study #3: The Healthy Start, Happy Start Study

In conversation with: Rachael Ryan, Research Assistant Working within: Centre for Psychiatry, Department of Medicine

 

What did you do?

The Healthy Start, Happy Start (HSHS) study aims to help parents better understand their child’s communication and behaviour, and to learn different ways of reacting. We set up a Study Advisory Group (SAG) and asked them for ideas on participant recruitment and materials. The group has developed over time to also consider how to explain different parts of the research to participants and how to best keep participants engaged.